After seven years as president of a patient association for a rare connective tissue disease, I would like to make a greater impact for the society. Give more consideration for the impact of acute treatments on children and young adults and take the anxiety and pain treatment more into account.
As this causes a lot of psychological damage in the long run.
For this greater goal, this platform was founded with for these children and young people.
With this platform PowerOfReflection.com, we can have a greater impact for a much larger target group to achieve an even brighter future.
Our new challenge:
There are already so many remedies for pain, but unfortunately they are still not used when it is a “short” treatment.
How wonderful it would be if there was adequate management of acute pain, including non-drug treatments. This limits permanent psychological damage.
With this goal we also endorse the importance of research for effective medication to cure these and more rare disorders.
We want to create the opportunities for all people with a rare disease. So they can enjoy life.
Our goals:
- Enjoy life & wheelchair accessibility!
- Scientific research for effective medication
- Adequate anxiety- and pain-free treatments
Empowerment
Together with your expertise we can empower this platform.
Thanks to committed professors, researchers, doctors and paramedics who constructively want to take on this challenge with me, we are this platform.
Thanks to all initiators and involved parties, we ensure a smile for every child and young person.