Our goal is: noticable improvement for a better quality of life for all children with a rare disease.

Adequate medicines, anxiety and pain-free treatments ánd to have the possibility to enjoy life.

Platform Power of Reflection stands for three purposes:
– Enjoy life & Wheelchair accessibility!
– Adequate pain and anxiety-free treatments
– Scientific research for effective medicines
 
=> Because everyone should be able to enjoy life!
=> You are not the disease, you happen to have the disease.
 
We join forces with all organisations who have the same purposes as our platform.
As we can be even more effective together to make noticeable changes.
Our mission endorses the importance of quality of life.
Good healthcare is important to make it possible to enjoy life.
To participate in the society and to be resilient in life.
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