{"id":6265,"date":"2024-05-08T11:05:29","date_gmt":"2024-05-08T10:05:29","guid":{"rendered":"https:\/\/powerofreflection.com\/?p=6265"},"modified":"2024-09-21T13:35:56","modified_gmt":"2024-09-21T12:35:56","slug":"blog_meer-dan-alleen-checking-the-box","status":"publish","type":"post","link":"https:\/\/powerofreflection.com\/en\/blog_meer-dan-alleen-checking-the-box\/","title":{"rendered":"More than just \"Checking the Box\" (source PGO Support)"},"content":{"rendered":"
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EUPATI-Netherlands started from the need for patient representatives to act as full discussion partners in the drug field. They can make a valuable contribution to drug research, innovation and development. The Dutch branch of the European Patient Academy EUPATI therefore offers them the necessary knowledge and tools since 2018.<\/p>\n

“Worth looking into further<\/strong>“<\/p>\n

Patient participation is essential for both patients (and their representatives) and researchers developing drugs. By linking those 2 stakeholders together, we want to make sure that they stay in the conversation and that participation is no longer just a \"checking the box,\" but actually adds value.<\/p>\n

“EUPATI-network<\/strong>“<\/p>\n

Because what can you do, if you are a small organization representing patients? Often such an organization is started from a voluntary perspective and they have few resources but great desires. Then you work together, learn from the other.<\/p>\n

Networking is very important in the sector. Cindy de Groot-Wan<\/strong> is one of the students of the EUPATI NL course 2023-2024. She brings physicians and scientists together from a patient perspective at the multidisciplinary level to research the source of collagen-related connective tissue diseases.<\/p>\n

Cindy: \"Years ago, I turned my life around. I decided to dedicate myself to a specific group of patients who could use my help. I started out as a one-person shop, now we are a large group. The EUPATI network is very valuable to me: no longer have I work on my own and figure everything out by myself. We can work together to increase our representation. We help each other with contacts, stakeholders who are important for follow-up research and talks.\u00a0<\/p>\n

\"The EUPATI network is very valuable to me. We can work together here to become a stronger representation.\"<\/strong> Cindy de Groot-Wan, EUPATI NL-student<\/strong><\/p>\n

This really lowers the threshold to try things and move forward. It's important to help each other to move forward, because we all have the same goal: to make the patient's life just a little bit easier!\"<\/p>\n

(source: https:\/\/www.pgosupport.nl\/)<\/p>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\t\t

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\n\t\t\t<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"EUPATI-Nederland is ontstaan uit de behoefte om pati\u00ebntenvertegenwoordigers als volwaardige gesprekspartner in het geneesmiddelenveld op te laten treden. Zij kunnen een waardevolle bijdrage leveren aan onderzoek, innovatie en ontwikkeling van...","protected":false},"author":1,"featured_media":6274,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[37],"tags":[],"class_list":{"0":"post-6265","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-blog"},"_links":{"self":[{"href":"https:\/\/powerofreflection.com\/en\/wp-json\/wp\/v2\/posts\/6265","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/powerofreflection.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/powerofreflection.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/powerofreflection.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/powerofreflection.com\/en\/wp-json\/wp\/v2\/comments?post=6265"}],"version-history":[{"count":11,"href":"https:\/\/powerofreflection.com\/en\/wp-json\/wp\/v2\/posts\/6265\/revisions"}],"predecessor-version":[{"id":6517,"href":"https:\/\/powerofreflection.com\/en\/wp-json\/wp\/v2\/posts\/6265\/revisions\/6517"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/powerofreflection.com\/en\/wp-json\/wp\/v2\/media\/6274"}],"wp:attachment":[{"href":"https:\/\/powerofreflection.com\/en\/wp-json\/wp\/v2\/media?parent=6265"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/powerofreflection.com\/en\/wp-json\/wp\/v2\/categories?post=6265"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/powerofreflection.com\/en\/wp-json\/wp\/v2\/tags?post=6265"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}