WHO ARE WE

As the national umbrella organization for Collagen Connective Tissue Disorders, we combine the knowledge, expertise and strengths for noticeble improvements in quality for life.

Gradually in creating this unique platform, this initiative has formed a team that does a lot of work behind the scenes. Together with our volunteers, we want to share with everyone who supports our goal and mission:

• Cindy, chairman, co-founder & inspirer
• Sascha, secretary
• Jacky, treasurer
• Marcel, co-founder & general support
• Syenne, inspirer & social networking
• Ecem, allrounder & events
• Chun, designer & developer
• Hisol, photographer & videomaker

Together, we want to change the quality of life, concretely! In this way, we make society aware that the health that "you and I" have is not so obvious for everyone. That hospital treatment is not just "a moment" and that enjoying and having fun in life should be accessible to everyone.

Through gatherings, we aim to raise awareness of our cause. Personal discussions with specialists and hospitals contribute to concrete changes in improving care. By putting the perspective of the doctor and the patient side by side, we discuss how care can be taken to an even higher level.

Beleidsplan