We collaborate with patient organizations, hospitals, medical specialists and researchers to better support patients with Collagen Related Connective Tissue Disorders.
Our Affiliated Patient Organizations
We join forces and share knowledge to support peer connections and patient experiences.
Affiliated Physicians, Paramedics, and Researchers
We collaborate with medical and paramedical professionals to improve the quality of life for people with CRCTD, aiming for treatments without fear or pain. At the same time, we work with researchers to advance groundbreaking studies for effective medication.
Prof. Dr. R.A. Bank
Ms. drs. E.C.M. Bouvy-Berends
Dr. N. Bravenboer
Drs. V.N.A. Breeveld-Dwarkasing
Dr. M.A. Créton
Dr. E.M.W. Eekhoff
Drs. F.L. van Erp Taalman Kip
Prof. Dr. R. de Groot
Dr. H.I. Korkmaz
Drs. W.D. Lubbers
J. McCormack
Dr. D. Micha
Dr. G. Pals
Prof. Dr. G.A.P.J.M. Rongen
Prof. Dr. F.J. Vermolen
Prof. Dr. S.N. de Wildt
Prof. Dr. M.C. Zillikens
(*) To protect privacy, all contacts will be through the founders themselves. No one else will be appointed to speak on behalf of the platform unless this has been personally discussed with the person concerned.
Health institutions and the associated Pyramid of competences, responsibilities and powers together form the foundation for major change. If you want to be part of this foundation, please send us a message.
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