After many years of chairing a patient association for a rare connective tissue disorder, I aim to have a greater impact on society. To generate more scientific research and attention to acute treatments where anxiety and pain control are given more considered. After all, this causes enormous long-term psychological damage until effective medication is found. With this greater passion to make society even better for these children and adolescents, this platform was created for this reason. With this platform PowerOfReflection.com we can work for a much larger target group to realize an even better future.