Green Village, Nieuwegein
An evening of connection, wonder, and collective strength
21 November 2026 | 16:30 – 21:30
Within the collagen and connective tissue disorder community, there is a wealth of knowledge, experience, and commitment. At the same time, much of this expertise remains scattered across different organizations, disciplines, and networks.
That is why we bring together patients, researchers, healthcare professionals, and advocates to share knowledge, learn from one another, and explore the future for people living with a connective tissue disorder.
While our conditions may differ, we also share many of the same challenges and ambitions. By connecting knowledge, experiences, and perspectives, we highlight what unites us and build bridges where fragmentation still exists.
In doing so, we create a stronger collective voice and lay a solid foundation for future collaboration, more research, and better care.
After all, better care, more research, and future treatments do not emerge from a single perspective. They emerge when patients, researchers, healthcare professionals, and advocates come together and work toward common goals.
That is the power of connection.
Programme:
🧬 The Path to Effective Treatments
With Nathalie Bravenboer (Amsterdam UMC), Associate Professor of Laboratory Medicine
Associate Professor of Laboratory Medicine
🧡 Patient Experiences
Personal stories from the Osteogenesis Imperfecta and Ehlers-Danlos communities
🔭 The Ideal Future for People with a Connective Tissue Disorder
With Diana Maas of Contactgroep Marfan Nederland
🤝 Stronger Together as a Patient Community
With Manon van Splunter, NFK,
Dutch federation for patient organisations with cancer diseases)
🎓 The Added Value of Joining Forces
With Maastricht University
In addition to the programme, there will be ample opportunity to connect during the dinner and networking reception. After all, meaningful change often begins with a good conversation.
Saturday, 21 November 2026 in Nieuwegein, The Netherlands
Together, we are stronger!
Thanks to the efforts of Stichting Power Of Reflection, participation in this complete evening including dinner and program is €20 per person. (No participation fee for friends of the foundation).
Do you have any questions? Feel free to send us an email: info@powerofreflection.com
English (UK) 
Nederlands