EFFECTIVE MEDICATION

Effective medication is the key to real change in the lives of people with connective tissue disorders. To date, there is still no cure.

Connective tissue disorders lead to a range of rare diseases—and even more devastating consequences. Think of more than a hundred bone fractures over a lifetime, joints that dislocate with ease, life in a wheelchair, and scarring that can become life-threatening. These conditions leave a lasting mark.

We are committed to progress through cross-pollination and knowledge-sharing. We collaborate with multiple university hospitals and work across organizational boundaries, partnering with a wide range of patient advocacy groups linked to connective tissue disorders. By bringing together researchers, doctors, and specialists, we are building a strong multidisciplinary platform.

The impact of these disorders is profound and life-altering. A broad, united approach to these rare conditions will accelerate the path toward effective treatments.

Ons eerste onderzoeksproject is o.a. in samenwerking met Hoogleraar (em.) R.A. Bank:

Prof. Dr. Bank has found an explanation for fragile bones based on new insights. The next step in this research is to create active enzymes. https://www.findnfund.com/projects/3P6TPP