Effective medication is the key to real change in the lives of people with connective tissue disorders. To date, there is still no cure.
Connective tissue disorders lead to a range of rare diseases—and even more devastating consequences. Think of more than a hundred bone fractures over a lifetime, joints that dislocate with ease, life in a wheelchair, and scarring that can become life-threatening. These conditions leave a lasting mark.
We are committed to progress through cross-pollination and knowledge-sharing. We collaborate with multiple university hospitals and work across organizational boundaries, partnering with a wide range of patient advocacy groups linked to connective tissue disorders. By bringing together researchers, doctors, and specialists, we are building a strong multidisciplinary platform.
The impact of these disorders is profound and life-altering. A broad, united approach to these rare conditions will accelerate the path toward effective treatments.
Ons eerste onderzoeksproject is o.a. in samenwerking met Hoogleraar (em.) R.A. Bank: