Effective medication is the source for noticable changes in the quality of life for people with a collagen connective tissue disorder. Until now, this condition is not curable. The consequences are severe and impact life significantly.
Connective tissue disorders results in several rare diseases and even more unpleasant consequences. More than a hundred bone fractures in a lifetime, easily dislocated joints, having to be wheelchair-bound and life-threatening scarring are just a few examples.
We share our knowledge by organizing seminars and symposia. We bring researchers, doctors and specialists together and join forces by forming a multidisciplinary platform. We collaborate with hospitals and researchers for the path to effective medication.
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