Stop brittle bone diseases! And Related Collagen-Connective Tissue Disorders.
Poor connective tissue production causes spontaneous bone fractures and rapid joint dislocation. We raise awareness of these rare disorders. We join forces for targeted research into cures.
For this purpose we do:
- create awareness with our own 5km run
- dedicated researches by proactively communicate with researchers and pharmacuetical industries
- collaboration with academic hospitals, doctors and researchers
What we already have done:
- national day for contacts with peers and members
- core team including researchers and doctors
- symposium
What can you do to help?
- become a friend of the foundation https://powerofreflection.com/en/vriend/
- Make a donation. Every small amount counts
- Join us with our national 5km run in October 2025
Feel free to drop by to meet us at VeineDAGEN. K-22
English (UK) 
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