We want treatments that address the cause, not just the consequences.
For many people living with a collagen connective tissue disorder, there is still no medication that treats the underlying cause of the condition. The consequences can be significant: bone fractures, joint problems, pain, fatigue and limitations in everyday life.
The impact of these disorders is profound and life-altering. A broad, united approach to these rare conditions will accelerate the path toward effective treatments.
That is why we support scientific research into effective medication. We bring together researchers, doctors, academic hospitals and patient organisations, combining knowledge and experience to help move research forward.
