"Reflection is the power
to make something
greater than good."
(Quote Cindy de Groot-Wan)
To improve quality of life with noticable results.
Our goal is: noticable improvement for a better quality of life for all children with a rare disease.
Adequate medicines, anxiety and pain-free treatments ánd to have the possibility to enjoy life.
– Adequate pain and anxiety-free treatments
– Scientific research for adequate medicines
– Enjoy life & Wheelchair accessible!
=> Because everyone should be able to enjoy life!
=> You are not the disease, you happen to have the disease.
We would like to join forces with all organisations who have the same purposes as our platform.
We can be even more effective together to make noticeable changes.